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        關注罕見疾病患者 臺灣藝人獻唱公益音樂會

        發布時間:2019年06月09日 22:59     來源:中國新聞網

        分享到:

          【解說】6月9日,范瑋琪、萬芳等多位臺灣音樂人在臺北國際會議中心共同參與一場公益音樂會,紀念罕見疾病基金會成立二十年。

          上世紀九十年代,面對醫藥資源不易取得、防治工作停滯不前等困難局面,臺灣罕見疾病病患家屬陳莉茵、曾敏杰等發起小額捐款,于1999年成立罕見疾病基金會,推動了臺灣罕見疾病病友權益的爭取、優生保健的推廣及政策制度的改革。

          當晚,范瑋琪和基金會北區天籟美少女團一起演唱。

          【現場】《最初的夢想》演唱現場

          最初的夢想緊握在手上 最想要去的地方 怎么會在半路就返航

          【同期】歌手 范瑋琪

          她們很用心的、很正能量的想要好好地把(歌唱好),而且唱得非常好,而且也圓了我小時候很愛唱合唱團的夢想。所以我覺得不是只是我們來幫助他們,反而是他們給我們好多能量。

          【解說】萬芳和23歲時因罕見疾病截去雙腳的歌手魏益群一起演唱《新不了情》。2004年曾飾演肌肉萎縮癥病友,萬芳說,扮演這個角色時她感受到生命絕望的心情。

          【同期】歌手 萬芳

          其實當時2004年我在飾演罕病的這個角色的時候,可以感覺到我們生命在面對絕望的這種心情。也希望透過今天晚上的相聚,在絕望的過程當中是不是可以給彼此一個祝福、一些希望。看似是我們給予了,可是是他們給予我們更多的希望的力量。

          【解說】據了解,全場音樂會一共演唱24首歌曲,3500張門票早早就預訂一空。

          張子胥 臺北報道

        責任編輯:【左盛丹】

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